DESMON – Italian Association Desmoid-type Fibromatosis

Desmoid-type Fibromatosis is a fibrous tumour; the causes of this disease are not known in depth so there are many uncertainties about treatment to follow.

Paola writes in her book: “In 2004, the National Cancer Institute of Milan proposed some new therapies which unfortunately did not gave benefit to me. One thing I’ve learned over the years is that you have to go ahead by trial and error with this rare disease”.

“The disease has to understand that it can have power over my body, but not in my mind and my spirit”.

To contact us

Fondazione Malattie Rare “Mauro Baschirotto” Onlus
Via Bartolomeo Bizio, 1
36023 Costozza di Longare (Vicenza)

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