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Prader Willi

0 in Sun, 01 December 2013, 14:20
In 2013 it was concluded the 48th cycle of rehabilitation for adults with Prader-Willi. The services that the Institute offers for the Prader-Willi syndrome are: Specialistic medical evaluation (neurologist, endocrinologist, geneticist, internist, physiatrist, radiologist, psychologist, neuropsychomotor therapist, physical therapist …).  Genetic diagnosis  Biomolecular and cellular research Daily rehabilitative Cycles and overnights for 4 times a year for about 1 month.  Continue Reading...
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SPAEN Conference

0 in Tue, 01 October 2013, 16:25
London, 10 – 12 October 2013 A new event in favour of rare diseases. The 4th SPAEN Annual Conference for Organizations Representing Patients With Sarcomas, GIST or Desmoid-Tumors received as a speaker, Dr. Daniela Segat, researcher at the “Mauro Baschirotto” Institute for Rare Diseases. During the conference, which took place the 11 Ottobre 2013 at 14:00, Dr. Segat illustrated the Continue Reading...
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